I'm not talking about the baseball team from New York; I don't follow them.
"Mets" is medical shorthand for metastasis, which was the unanimous consensus during this morning's tumor board meeting. I have glioblastoma mets in my spine.
Dr. Fink asked me to come in afterward -- with my husband -- which sounded ominous at first, but it served a practical purpose. We went over the plan of attack, and there were a lot of details. (I was grateful that this wasn't the "get your life in order" talk.)
Because there is no defined scope of tumor cells beyond the visible mass, cyber-knife was ruled out for now. So was radiating the entire spine and cranium, because it would have a high risk of destroying bone marrow to the point where chemotherapy would be impossible.
I start Temodar chemotherapy on Monday. This is the oral stuff that began my treatment back in 2006. Tomorrow I meet with my neurosurgeon to arrange for implantation of an Ommaya port in my head sometime early next week. The Ommaya port goes in my head to facilitate repeated intrathecal injections of Topotecan chemotherapy.
I also start radiation treatments soon. I met the radiation oncologist today, who participated on the tumor board, and who is designing a plan for me. I go in on Friday for C-T scanning and marking* in preparation for 27 sessions that will probably start next week.
*I will have a low back tattoo. You will never see it.
I start taking steroids tonight, which means my next book will finally get finished. (Another answered prayer!) I'll be hyper and hungry, but it might provide some pain relief as I go through this process.
This is not a common situation, so we have no idea how (or if) this will work. But it's a plan, and it was clear that the doctors were guided, as we'd hoped and prayed they would be.
The Mets will not win this season. Even if we fail to destroy them, they cannot destroy anything but my body, which was intended to die someday anyway, followed by a resurrection. They can't destroy ME -- in fact, I think they are making ME stronger.